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Search Home : Health : Conditions and Diseases : Neurological Disorders : Muscle Diseases : Muscular Dystrophies
See Also:
- A Guide for Parents: This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
- Becker Muscular Dystrophy Information Exchange: Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
- DMD Information: Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
- DMD Information and Resources for Teachers: Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
- DMD Options: Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
- DMD Pioneers: Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
- DoctorBach.com: This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
- Duchenne/Becker Muscular Dystrophy: Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
- Duchennes: Provides links to medical and non-medical organizations and people with Duchennes problems.
- FSH Friends: This site is a `resource` for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
- FSH-MD Support Group: Provides support for those with Facio Scapulo Humeral and their carers.
- General Practice Notebook - Duchenne muscular dystrophy: Clinically-oriented information.
- HealtHub: A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
- Living For Today, Preparing For Tomorrow: Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
- MDA Ride For Life: Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
- Muscular Dystrophy Campaign: Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
- Muscular Dystrophy Community: Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
- NINDS Muscular Dystrophy Information Page: Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
- National Registry of Myotonic Dystrophy and FSHD Patients and Family Members: Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
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